Almost all of my testing is now done in preparation for the bone marrow transplant, the last test is tomorrow - a pulmonary function test. My friend Chad, who is also going thru this at the same time, said it is going to be an hour of blow, blow, blow followed by faster, faster, faster....OMG!! hahaha Sorry, that one just gave me the giggles. Anyhow....once that is done the insurance has to approve the transplant and then I get the new port and off we go.
I spoke with UCLA and found out some information that didn't make me all that happy, but it is part of the process and I am going to push forward with it (as if I have a choice)! First, they let me know that I have to be on call for 2-5 days during the harvesting process. I am assuming that this does NOT mean I can hang out at home (which is 88 miles one way from the hospital) and wait for them to call me in. So...during that time I am going to have to stay close to LA...okay, not a huge deal, we can take the trailer down to the beach and stay there for a few days. Then...they tell me that there are two requirements for me to be discharged (after being in the hospital for no less than 3 weeks) 1. I have to stay close to the hospital for 2-4 weeks, just in case so I can get there fast. 2. I have to have someone as a caregiver during that time 24/7 - again just in case. THEN she tells me that they recommend this UCLA Tiverton hotel joint and says that is it about $120 per night, and says is that going to be okay? Ummmmm HELL NO! Who has that kind of money?? Not us, that's for sure! I don't know if the doctor will be too fond of us staying in the trailer at that time so I need to find other lodging. So, I have been spending tons of time online printing forms from organizations that help with this type of stuff. My doctor is going to have fun verifying and signing 500 applications that I am going to bring to him - LOL
I have also been online entering all kinds of giveaways! LOL If things go right, I am gonna have a 2011 Buick from Ellen, some UGG boots from Extra, a Target gift card from Rachael Ray and all kinds of other goodies....LOL I have also been entering the second chance drawings from non-winning scratchers...come on Ca Lottery!!! I can't even believe that this is my life right now....I miss school and work! BUT, I will surely be a happy girl if I win ;o) Hehehehe
I guess that's it for now...I'll let you all know if I come up with anything else to tell you! :o)
xoxo - Joni
If you have a La Quinta or Candlewood in the area, try them. Contact them and spill your whole story. I've heard them working out rates/comping rooms for situations less severe than yours.
ReplyDeleteWorth a try. Tell 'em that someone you know in TX has received help this way.