So, last week I did all of my testing required for UCLA and everything went pretty well. I know I have a heart because I saw it on the screen and I heard it beat. Evidently I have a lot of blood because they took a crap load out of me and I was still able to get up and walk out. I can hyperventilate on cue with a snorkle apparatus in my mouth..and only see a couple of stars. AND I think I passed the psych evaluation...LOL We will see about that one!
Yesterday I got the confirmation call that I had an appointment today with the doctor...and then I got another call like 30 minutes later from their office. They were calling to ask me if I am having any bruising or bleeding, such as nosebleeds or blood in the urine. I told her no and asked why and she said that my platelet count was only 20K (normal range is 120K to 140K) and that if anything happens I need to call the on call nurse line and they will help me. Ummm, yea this TOTALLY freaked me out (although on facebook I said I was a little concerned) and I had a hard time sleeping last night, just waiting for my nose to explode or something! LOL Well...it didn't and I lived to get to the doctor this morning! Soooooo I get to the doctor and he asked me how I was doing, I said "fine, but evidently my platelets are not cooperating" he said "oh that was last weeks counts" and I told him that I also did blood work yesterday so he had them pull the results...and my platelets were at 104K....no need to worry! BUT this means that last week they were shitty and my nose could have exploded then!! But, it didn't and I am a-okay!
So, here is the not so happy news... He told me that while we wait for the approvals from the insurance company, Dr. DeVos (UCLA) may want me to go ahead with a fourth round of chemo. Pfffffttt!!! That did NOT make me happy at all, although I understand why. It can take a while to get the approvals back and they don't want anything growing back in the interum. I guess they don't care that I want MY HAIR TO GROW BACK!!! My poor head is always cold and my eyelashes and eyebrows are barely hanging on! I talk to them everyday and tell them just to hang on a little while longer and the rest of their friends will grow back soon...so far it is working but if I shoot them up with another round of this poison, I think they are going to jump ship on me! Bret told me tonight that he will color them in for me and all I could imagine was that one email about not giving chola's sharpie markers!!! EEEEEKKKK!! Yea - that is not going to happen!!
Anyhow, I should know by tomorrow if I have to do the fourth round...cross your fingers that I don't..because I may have to write a really pissy blog if that happens!
In other news, I got to babysit Tanner yesterday while mama Kelly got her hair did! Must be nice to have hair to get did - LMAO!!! He was a good boy and slept on my chest almost the whole time. I have never babysat a baby so little so it was as new for me as it was for him, I sure am glad he cooperated! Although after I changed, fed and burped him he got a little testy so I picked him up right on time for him to spit up down my tank top, between my boobs, all the way to my tummy...hahaha Great shot kid! He is such a cute little thing and I love his face! Kelly and I are going to take pictures of me and him while we are both still bald...hahaha This is what happens to two women that stay home with nothing to do!
That will do it for now...if I repeated anything from the last blog, oh well - I have chemo brain and if I have to deal with it, so do you!! :o) hehehehe
xoxo - Joni
No comments:
Post a Comment